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\nIf you have been diagnosed with Marfan syndrome, it is important to follow your treatment plan, make healthy lifestyle changes, and get mental health support. Learn how to prevent or reduce complications in the future. If you are thinking about becoming pregnant, discuss the possible risks with your doctor.
\nHow often you need to see your doctor for follow-up care will depend on your treatment and symptoms.
\nReturn to Treatment to review possible treatment options for Marfan syndrome.
\nTo monitor your condition, your doctor may recommend the following tests:
\nPeople who have Marfan syndrome may need more than one heart or blood vessel surgery over time. After surgery, you may need medicines and regular monitoring. Follow all medical instructions given by your doctor. Recovery after open surgery may take months.
\nTo help prevent complications from Marfan syndrome, your doctor may recommend you avoid the following:
\nLiving with Marfan syndrome may cause fear, anxiety, depression, and stress. Talk about how you feel with your healthcare team. Your doctor may recommend:
\nIf you have Marfan syndrome, you are at risk for a life-threatening aortic dissection. If your aorta is weaker or larger than normal, it is important to know the signs and symptoms of a dissection or rupture, which may include:
\nIf you have symptoms of aortic dissection or rupture, call 9-1-1.
\nTo prepare for an emergency:
\nMany women who have Marfan syndrome have safe and healthy pregnancies and deliveries. However, there are some added risks during pregnancy and delivery. The most serious risk is aortic dissection due to extra strain on the heart. If you have Marfan syndrome and have already experienced aortic dissection, it is not safe for you to become pregnant.
\nIf you are thinking about getting pregnant, talk with an obstetrician, a doctor who cares for pregnant women, who is familiar with your condition and has experience with high-risk pregnancies. Your doctor might recommend that you have surgery to fix your aorta before you try to get pregnant. Your doctor will also make sure that your medicines are safe to take during pregnancy.
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